Oaklynn has been having a hard time eating and it keeps getting worse. It takes us at least 45 minutes to get through a meal with her. A couple other Rett mom's had told me that their daughters got feeding tubes because it started taking hours to get through meals because their daughters had a hard time eating. They believed that the girls wanted to eat and were hungry but just didn't have the energy and strength to eat (because they are always grinding their teeth and throwing their arms and body around that it is exhausting for them). They got feeding tubes for their daughters but they are still able to eat with their mouth, they just use the feeding tube to make sure they are getting all the nutrition they need.